“For I know the plans I have for you ,
declares the Lord, plans to prosper you
and not to harm you, plans for a future
and a hope.”
Jeremiah 29:11
“But as for me I know that my
Redeemer lives.”
Job 19:25
“Do not grieve, for the Joy of the Lord
is your strength.”
Nehemiah 8:10
“I can do all things through Christ who
strengthens me.”
Philippians 4:13
Kay’s Story
Kaylyn Elaine Warren
June 8, 1988 ~ March 13, 2007
Warren Family Portrait
Summer 2006
Bill, Andrew, Kaylyn and Laurie
While playing in a field hockey game on October 15, 2005 the headaches
that Kaylyn had been experiencing for the past week reached their peek.
Unable to continue the game, we were off to the ER for a sure diagnosis
of Migraines.
“The emotional upheaval we experienced in the ER, blown away with
the diagnosis of Kaylyn’s Leukemia on Saturday afternoon remains
surreal and difficult if not impossible to put into words. But in the
moments that followed God moved quickly and mightily to confirm
His complete sovereignty over the situation. We hugged together in
prayer, acknowledging that our God is truly a sovereign God whose
ways are perfect yet unsearchable and beyond our understanding.
That we know God loves Kaylyn and this family and that He will meet
our every need to sustain us through Kaylyn’s battle with Leukemia.
Bill Warren - Caringbridge - “My Story”
Kay declared “No more crying! It is what it is and we’ll do what we have to
do! God is in control.” Following the diagnosis Kaylyn experienced her first
hospitalization lasting 28 days, which included several surgeries, a bone
marrow biopsy (the first of many), chemotherapy and its numerous side
effects, the loss of 20 pounds and cruelest of all: Kay lost all of her beautiful
long brown hair.
Kaylyn Knew God has a plan for her life and she would continue to trust
Him no matter what happened. Needless to say, we were very encouraged
in early November when she was discharged to home and told the initial
induction round of chemotherapy had dropped the leukemia count in her
blood to zero. Kay left the hospital with a schedule for the following months
to receive different chemotherapies to maintain her preliminary remission
that had been achieved. All was Well!
Kaylyn had just started her senior year of high school at Red Lion Christian
Academy when her leukemia was diagnosed. After that first admission she
was unable to complete the year attending classes, so a home study
program was developed by her teachers. In between chemotherapy
treatments she would study and turn in assignments when she was finally
feeling up to it. She was also feeling well enough at times to attend sporting
events, sing the opening number for her school musical, Annie Warbucks,
and even attend her senior trip to Orlando accompanied by mom to monitor
her medications and activities. Yes, All was Well!
Then the week we returned from Florida, Kay started having headaches
once again. After blood work and a bone marrow aspiration it was
determined that Kaylyn had relapsed and the leukemia was back with a
vengeance. The chemotherapy regime was changed to induce remission
once again and the process for bone marrow or stem cell transplant was
implemented. Because no one in our family was a match, the National Bone
Marrow Donor Registry was notified to find a compatible donor. Once again,
Kay’s doctors had success inducing remission and she was able to attend
her senior prom and graduated with honors in June 2006 with her class.
By the end of June a donor had been found and we were off to Seattle, WA
to the Seattle Cancer Care Alliance, where Kay was due to receive a
lifesaving stem cell transplant. One week after arriving and with all the
testing completed, we were told Kaylyn had relapsed - the leukemia was
back - again.
The doctors in Seattle tried for the next two months to get Kaylyn back into
remission advising that the chance of success at this point was only about
30%. We hadn’t realized just how aggressive Kay’s leukemia was and that
each time the cancer returned it had mutated. Therefore, the chemotherapy
drug she had just received would now be ineffective and a new protocol
needed to be found.
“God’s lamp shined on my head and I walked through darkness by His
light.” Job 29:3
Dearest Friends, our Kaylyn is not in remission. In fact the leukemia is
growing stronger everyday. The counts in her blood are very high but
the infection in her blood seems to be controlled for now. We have some
hard decisions to pray about this evening and time is of the essence.
Please pray that God will lead us to “His Perfect Will” concerning Kay.
“Don’t be sad, because the joy of the Lord will make you strong.”
Nehemiah 8:10
Caringbridge Journal Entry
Friday, August 25, 2006 - 07:35, CDT
On August 28, 2006 we returned to Delaware to the care of Kay’s
Hematologist. In the seven months that followed many different protocols
were tried, but all failed to induce a complete remission. They did however
cause at one time or another liver failure, serious blood infections, repeated
fungal infections, dangerously low hemoglobin and platelet counts, bells
palsy, hand and foot syndrome and pain that is really indescribable. But
there was more that Kay endured during the treatment of her cancer:
“. . . . . over the course of 17 months, she had a total of four Hickman
catheters, which were inserted into her chest with a tube that ran to her
heart. She had, at one time or another, a femoral catheter in her groin, a
jugular catheter in her neck, two separate picc lines in each upper arm
and countless peripheral IVs, so she could receive chemotherapy, blood
products and a multitude of IV fluids. As infections would arise, one
catheter was relapsed by another, over and over again. Kay also had a
lumbar port in her side with a tube running under the skin to her back
and into her spinal column. When that was removed due to
complications, they inserted an Omaya reservoir in her skull with a tube
that ran into the ventricular spaces of her brain in order to access the
spinal fluid and also receive chemotherapy.”
Laurie Warren - Kaylyn’s Memorial Service 3-24-07
Kaylyn almost made it to transplant three times, but it was not to be. So
when we were told that the leukemia was taking over faster than could
be controlled and there were no more options, Kaylyn made the decision
to go home from the hospital with hospice care. It was March 8, 2007
“We are taking Kaylyn home today where we will wait for Jesus to come
and take her to her real home in Heaven. There isn’t anything left for
her to try that would do anything except give her more pain. We have
arranged for hospice with one of their nurses, Mary Ellen, whom Kaylyn
knows and loves. Her time will be short and Kay is so very tired and
weary. She is ready to see Jesus. She is not scared, just concerned
about us - that is so Kay! We need nothing and ask for no visitors. Our
God has answered all of our prayers in His mercy and grace. He has
given Kaylyn a life so full and we are so privileged that He chose to use
her to further His Kingdom. We praise the Lord for Kay and her life that
was devoted to Him. We love her with all of our hearts and now she will
see God! Please pray for peace and rest for our precious child.”
“But as for me, I know that my Redeemer lives, and that He will stand
upon the earth at last! I will see Him for myself. Yes! I will see Him
with my own eyes.” Job 19:25 & 27.
Caringbridge Journal Entry
Thursday, March 8, 2007, 12:49pm CDT
“Jesus came at 1:00am this morning to take
Kaylyn home. She is now at peace and dancing
with the angels. No more chemo, no more IVs,
no more pain, no more cancer. She has been
restored! Praise God! Although our hearts are
breaking, we can’t help but rejoice because now
she is with her Savior. Kaylyn fought so very
hard, especially in the past month and now she
has won the fight for all eternity. Cancer didn’t
beat Kaylyn - God beat the cancer! We believe
that life on this earth is only a preparation for
eternity. Kaylyn prepared will. Her crown will be
heavy with jewels and the Heavenly Choir will
now have a special voice. Our hearts will
forever beat together as we wait to join her in
Paradise. Thank you Jesus for entrusting this
precious child to us.
“There is a time for everything, a season for
every activity under Heaven. A time to be born
and a time to die. God has made everything
beautiful for its own time.
He has planted eternity in the human heart.”
Ecclesiastes 3:1-2,11
Caringbridge Journal Entry
Tuesday, March 13, 2007 3-16am, CDT